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#12038 - 05/08/08 11:13 PM Anyone hear of another baby with EHK and Down Syndrome?
Martika Offline
Member

Registered: 04/15/05
Posts: 78
Loc: Southern California
I'm having my boy in late aug. or early September, whenever they set the Csection date.
I found out yesterday that not only does he have Down Syndrome, but also EHK.. We find out saturday if he has a heart defect also.

I just wondered if anyone had heard of a child with a case of each?

Cindie.
_________________________
Mommy to TJ (EHK, T21, 8/14. VSD/ASD repair 11/4) Wife to WONDERFUL Husband and daddy Carlos, and Baby Mason Born 12/9/09

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#12039 - 05/11/08 09:07 PM Re: Anyone hear of another baby with EHK and Down Syndrome?
mspowell981 Offline
Member

Registered: 06/08/07
Posts: 32
Loc: jacksonville, fl usa
hello,

im a nicu rn and recently took care of a kiddo who was downs and some form of ichthyosis. so, i have seen it, but im not sure what type of ich. it was...

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#12040 - 05/13/08 10:23 PM Re: Anyone hear of another baby with EHK and Down Syndrome?
Martika Offline
Member

Registered: 04/15/05
Posts: 78
Loc: Southern California
That's very interesting. So far no one can give me a Yes or No on a baby with EHK and D/S.
_________________________
Mommy to TJ (EHK, T21, 8/14. VSD/ASD repair 11/4) Wife to WONDERFUL Husband and daddy Carlos, and Baby Mason Born 12/9/09

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#12041 - 05/14/08 02:42 PM Re: Anyone hear of another baby with EHK and Down Syndrome?
Sarah Helen Offline
Member

Registered: 05/31/03
Posts: 383
Loc: Twin Cities, Probably North of...
Sorry Cindie,
I've only just met another person with EHK. It is so rare that finding someone with experience of a baby with D/S and EHK might be very difficult.
I'm sorry that you are travelling in unknown territory now but I know that you have a lot of love and support in you and around you.

Good Luck!

------------------
Sarah
35 with EHK

[This message has been edited by Sarah Helen (edited May 14, 2008).]
_________________________
Sarah & Son
EHK & ARCI
"Today is the Tomorrow that you worried about Yesterday, and all is well"

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