We're back! lol Quick admission...we were only there for 21 hours lol Our nurse said that was the fastest she's ever seen anyone learn how to work the pump and take the tube in and out [img]http://www.ichthyosis.com/ubb/smile.gif
[/img] Well, Dmitry and I sort of tag-teamed - he did the tube, I did the pump. I'm a little anxious about putting it in myself.
Dr. Bruckner (one of the med. advisors on the FIRST board) gave us Mepitak, or something like that. It's not an adhesive, but made of silicon, and said as soon as it got wet it would just slide off. She said they use it on EB patients, so it's good for sensitive skin. We'll be trying it tonight to see how it works. If it doesn't we'll be looking into our other options.
Man, I'm glad that's over. I hate being in hospitals, I hate seeing strangers poke and prod Julia. Initially, seeing the tube put in was just about as horrible as I imagined (the nurse got it wrong the first time she tried, Julia was trying to cry but no noise was coming out, and it turned out that the tube coiled at the back of her throat, I just about had a heart attack). It was better when Dmitry was doing it, and maybe after awhile I'll get up the nerve to try it myself.
[This message has been edited by CShell (edited May 05, 2006).]