So, at our last GI appointment (on March 31st), we basically came to the conclusion that on April 18th we'd start making plans to admit Jules to the hospital to learn how to use an NG tube for night feedings b/c she hasn't been gaining weight. Thought we'd give it a shot, no harm no foul, though I really don't want to.
Unfortunately, today (the 18th), we started seeing a new GI doctor. Stanford has an outreach clinic right here in Monterey, so we agreed with the docs up at Stanford (since they wanted to see us twice/month aka every 2 weeks) that we'd drive once/month up there, and see the doc down here once/month (they're rotating GI docs from Stanford). Does that make sense? Makes sense in my head lol
Anyway, so this new doctor comes in, looks her over, talks to us for quite awhile (which I was really happy about, the other one we see couldn't care less what I think), weighs her (4 1/2oz more than two weeks ago!), and says he doesn't think it's imperitive we decide about the NG tube right now. He said when he looked at her chart, he thought he'd see a very desperate situation that needed to be acted on quickly, but actually meeting Julia changed his mind. Said she doesn't look malnourished, smiled big at him (yay Julia!), and in every other aspect but her weight looked very healthy. And would talk to our other GI doc.
It's just very frustrating to have two doctors saying two different things!! Ultimately I think we'll at least give the NG tube a shot for a month or so (my husband really wants to try it, but I think he views it more as a miracle cure, rather than something that probably won't work), but just not knowing when really drives me batty. I SUPPOSE I could have said, lets just set up the appointment...but I'm so reluctant to do it, b/c I don't really have faith that it'll work, that I don't want to jump the gun. IDK.
Sorry, just ranting now lol I bet you all get sick of me talking about this! [img]http://www.ichthyosis.com/ubb/smile.gif