This is a cross post with the xli forum.
Our son Tyler, due in August, does have x linked ichthyosis. I was very prepared for the news and I feel very okay with the diagnosis thanks in huge part to everyone on this website and all of the advice we have received. Thank you so much! I will be around with more questions I'm sure, but for now I just wanted to update.
I contacted the ichthyosis foudation and they sent me the name of two great doctors in my area. I'll be seeing one of them in the next few weeks to discuss my son and our family history. I will be very well prepared for August.