Dear Mom...alright, I feel silly writing that, but anyways...
Hi! My name is Sarah and my DD, Ema, was born with what we have been told is CIE. She has yet to have a biopsy done so CIE is the dermatologist's best guess.
She is 19 months.
If you are in North Carolina I know two lovely ladies that are probably in your neck of the woods. Skittles71 and BeepBeepinaJeep are in NC...you are so lucky!
I am at home 6 days a week (only work 1) and always here if you have any questions or just want to chat.
My email is firstname.lastname@example.org.
Welcome to our loving community!
Hope that you are planning on going to the conference...in which case...SEE YOU THERE!!!
Sarah (Craig, Matt and Ema)
Craig and Sarah Hodgkinson (aka Dad and Mom to Matt and Ema)
Ema has been diagnosed with Congenital Ichtyosiform Erythroderma (CIE)