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#11336 - 03/21/06 04:34 AM New website
lsteven Offline

Registered: 03/08/06
Posts: 18
Loc: toledo, OH
Hi everyone...just wanted to share with you the webpage I've been working on for our little princess! We wanted to share her story with everyone so that maybe people can better understand what us mom's go through on a daily basis! ENJOY!!!

#11337 - 03/21/06 08:58 AM Re: New website
CShell Offline

Registered: 11/10/05
Posts: 1193
Loc: Fort Meade, MD
What a FANTASTIC idea! I was actually thinking about doing something like that.

I wonder...if more people would be willing to make websites like that for their children...I have a friend who owns a webspace business, who maybe might be able to help us. Like, create a main page that would have links to all of our different websites. She's like, a computer guru, and knows how to put stuff in the coding to make it come up in search engines and stuff. I sure wish a website like yours came up when I was searching for info on Netherton's a few months ago!
Mom to Julia

#11338 - 03/21/06 02:07 PM Re: New website
hollie Offline

Registered: 11/23/05
Posts: 31
Loc: Houston, TX
Zoey is beautiful! Thanks for sharing the website with your stories and pictures of your family.

#11339 - 03/29/06 03:37 PM Re: New website
thehodgees Offline

Registered: 01/29/06
Posts: 130
Loc: Woodstock, ON, Canada
Zoey is such a beautiful little girl! Looking forward to getting to know you all.
Sarah (Craig, Matt and Ema)
Craig and Sarah Hodgkinson (aka Dad and Mom to Matt and Ema)
Ema has been diagnosed with Congenital Ichtyosiform Erythroderma (CIE)

#11340 - 03/29/06 06:41 PM Re: New website
victoria Offline

Registered: 03/19/05
Posts: 193
Loc: Berkshire, England
What a fantastic page and WOW your daughter truly is breath taking she is beautiful !!
May your strength in God guide your family all the way hun


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