Originally posted by Laurensmom:
Thanks for responding so quickly. We, too, were told by the derm and the pharmacist that Desonide was mild and only slightly stronger than the over the counter hydrocortisone lotions. She does not seem bothered by it, but to date I see no difference in her skin's appearance or in her itching. Have you ever used lactic acid on your little ones? We have been offered in the past something less than 5% compounded in an otherwise benign lotion and have not yet tried it. It may be our next step and Id love a parent's opinion. Thanks again for reaching out. It is always appreciated.
When my son was born, I remember our dermatologist spoke to us about one day using Lactic acid when my son was bigger but he has not mentioned it again. I dont know if he hasn't mentioned it again because its not necessary or because my son is not big enough in his opinion yet. We actually just went to the dermatologist yesterday and there was no mention of changing our routine or trying anything new. The kids both look pretty good and I work so hard to make sure they are always moist and comfortable. Our discussion yesterday with the dermatologist was mainly about overheating in the summer because our son gets pretty red pretty fast in anything above 80 degrees or so. Other than that it was the usual, "They look wonderful...your doing a great job." [img]http://www.ichthyosis.com/ubb/wink.gif
In regard to you speaking with Patti...if you could either pass this post on to her or email me with her email contact that would be wonderful. I have been thinking about trying to contact her lately. When my son was born, they mentioned in the NICU that the last baby born with the membrane was born about 8 years before my son and that the baby's name was Hunter. The nurses told me all about Patti and Hunter and said that they were sure she wouldn't mind me contacting her but I guess I felt a little funny calling somebody out of the blue that didnt know me so I didn't put much thought into it. When my daughter was born last April, one of my nurses actually knew Patti and Hunter and she said that her daughter was friends with Hunter but that they had moved from Pittsburgh to Florida. My husband just recently changed jobs and when he was talking to on of the guys in the office, they were talking about our kids and there was mention of our younger two having Ichthyosis. A few days later, the guy came back to my husband and asked again what the name of their skin condition was and said that he knew a little girl named Hunter who used to go to their church that had Ichthyosis. Small world I suppose LOL. Everyone who knows or knew Patti and Hunter says about how nice they are and now I am wishing I would have contacted her when my son was born 3 years ago. I came across these boards when my son was younger but never posted or read much until now. I recently came across them again and saw a post that I could contribute to so I posted and I am finding that I am enjoying these boards and talking to other moms who do the same thing I do all day.