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#10406 - 02/06/05 09:03 PM Annoucement
charmed7 Offline
Member

Registered: 03/07/04
Posts: 165
Loc: Hartford, CT
Just wanted to tell everyone I am pregnant with my 2nd child. I'll keep everyone updated. I'm optimistic because my OB/GYN has "heard" of ichthyosis. That's a start [img]http://www.ichthyosis.com/ubb/smile.gif[/img]

I found this neat "ticker" so I wanted to try and add it. Talk to you all soon.


<IMG SRC=\"http://www.TickerFa...ng\">


[This message has been edited by charmed7 (edited February 06, 2005).]
_________________________
I have a gifted 14 year old boy with X-Link Ichthyosis, Type I Diabetes and Bipolor Disorder.
I have a 7 year old girl who is uncanningly healthy
I have a spunky 1 year old who doesn't quite understand the word "No" yet.

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#10407 - 02/07/05 06:14 AM Re: Annoucement
ShaunaJ Offline
Member

Registered: 07/29/03
Posts: 233
Loc: Ogden,Utah
Congrats! I am so happy for you. You will have to keep us posted through the whole thing.

Shauna
_________________________
Shauna Johnson
Independant Consultant
Cookie Lee Jewelry
"Choose a job that you LOVE and
you'll never WORK a day in your life!"

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#10408 - 02/07/05 06:08 PM Re: Annoucement
Hearsay Offline


Member

Registered: 01/16/04
Posts: 1449
Loc: Richmond, VA, USA
Congratulations! Let us know how things are progressing. I'm glad your OB is willing to check out ichthyosis. That is definitely a start!

Jennifer
_________________________
Jennifer
Ichthyosis-en-Confetti Type 2
Husband, Nathan - 10, Elliot - 7, Oliver - 4, all affected.
I also have an unaffected daughter, age 8.


email: jennifer at confettiskin dot com
facebook - find me on "ichthyosis mommy spot" or "friends of ichthyosis"

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#10409 - 02/11/05 08:04 PM Re: Annoucement
threerxli Offline
Member

Registered: 01/14/03
Posts: 515
Loc: virginia
LOL thats so funny, at least she has heard of it! Thats a little bit of what our new peds doctor said when we first moved back to Virginia. She was hilarious. Anyway, its not necessarily whether they have heard of it anymore to us, its more or less...will you find out more about it?
I am so happy for you, congrats.
I hate surprises, are you going to find out if its a boy or a girl? The d--- triple screen ruined it for us with the third. once that blood test came back with low estriol we said "great another boy!" and the doctor looked at us and said "how do you know????"
Arent the doctors cute????
I am so happy for you!!!!!!!

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#10410 - 02/18/05 08:52 PM Re: Annoucement
charmed7 Offline
Member

Registered: 03/07/04
Posts: 165
Loc: Hartford, CT
I want it to be a surprise. But was thinking if the test came back positive for ichthy, the surprise will be up. My husband wants to know...we'll see. Maybe he'll have to work during that ultrasound [img]http://www.ichthyosis.com/ubb/smile.gif[/img]
_________________________
I have a gifted 14 year old boy with X-Link Ichthyosis, Type I Diabetes and Bipolor Disorder.
I have a 7 year old girl who is uncanningly healthy
I have a spunky 1 year old who doesn't quite understand the word "No" yet.

Top
#10411 - 02/22/05 08:18 PM Re: Annoucement
threerxli Offline
Member

Registered: 01/14/03
Posts: 515
Loc: virginia
Have the doctor put it in an envelope! LOL A friend had that done, of course by the time she reached the parking lot she had it torn open and was on the cell phone faster than you can say speed dial! LOL
We only did not know for our first born..I hated it and loved it. I hate surprises, but in todays world, there are hardly any babies born, that the parents had no idea until the birth-unless you are in the military that is. Most places still have the 1 ultrasound/sonagram rule, and if the baby does not pose for the camera..you have to wait. That is why we didnot know with the first. Congrats, I am so excited for you.

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#10412 - 03/02/05 08:57 PM Re: Annoucement
charmed7 Offline
Member

Registered: 03/07/04
Posts: 165
Loc: Hartford, CT
So I had my first visit with the OB/GYN and he turned his notebook and said, "I e-mailed F.I.R.S.T. ..." I don't think I heard him after that. Just blew my mind he actually did that before he even met me. I have blood test done next month, and an ultra sound the month after that. Time will fly, I know it. 1st trimester is officially over [img]http://www.ichthyosis.com/ubb/smile.gif[/img] Thanks guys.
_________________________
I have a gifted 14 year old boy with X-Link Ichthyosis, Type I Diabetes and Bipolor Disorder.
I have a 7 year old girl who is uncanningly healthy
I have a spunky 1 year old who doesn't quite understand the word "No" yet.

Top
#10413 - 03/31/05 08:53 PM Re: Annoucement
charmed7 Offline
Member

Registered: 03/07/04
Posts: 165
Loc: Hartford, CT
So I had my 4 month visit with my OB/GYN. We talked about the tests for diagnosis and decided not to do it. I really don't want to have an amniocetis (spelling?) and if tests come back positive for this baby I might feel pressured to have that done. Plus my husband is like 100% against having any tests done [img]http://www.ichthyosis.com/ubb/smile.gif[/img] He isn't much of a talker when it comes to the bad things. So I've decided to think (and talk) positive and let nature take it's course. I'm having a planned C-Section anyways, so the labor part isn't even part of my concern. Next month I'll find out (baby willing) if I'm having a boy or girl. I'll keep you all updated.
_________________________
I have a gifted 14 year old boy with X-Link Ichthyosis, Type I Diabetes and Bipolor Disorder.
I have a 7 year old girl who is uncanningly healthy
I have a spunky 1 year old who doesn't quite understand the word "No" yet.

Top
#10414 - 04/04/05 06:30 PM Re: Annoucement
victoria Offline
Member

Registered: 03/19/05
Posts: 193
Loc: Berkshire, England
YAY a new baby how exciting [img]http://www.ichthyosis.com/ubb/smile.gif[/img] I Wish you all the best and keep us updated - my mates jsut had baby , little boy called Keeron only weighed 4lb but hes a right cutey, my little one is seven months now only seemed yesterday i was walking down to theatre to having him lol

Quote:
Originally posted by charmed7:
So I had my 4 month visit with my OB/GYN. We talked about the tests for diagnosis and decided not to do it. I really don't want to have an amniocetis (spelling?) and if tests come back positive for this baby I might feel pressured to have that done. Plus my husband is like 100% against having any tests done [img]http://www.ichthyosis.com/ubb/smile.gif[/img] He isn't much of a talker when it comes to the bad things. So I've decided to think (and talk) positive and let nature take it's course. I'm having a planned C-Section anyways, so the labor part isn't even part of my concern. Next month I'll find out (baby willing) if I'm having a boy or girl. I'll keep you all updated.

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#10415 - 04/14/05 08:43 PM Re: Annoucement
SusieL Offline
Member

Registered: 10/17/03
Posts: 51
Loc: Raleigh, NC
Congratulations! How exciting! My husband and I have talked a lot about when we have our next child - we're planning to get pregnant this fall. Anyway, we have been doing the great debate about testing and about finding out the gender. The only way I know of to test for LI is through the amnio. Am I wrong? Is there another way that is less risky for the baby? (I know amnio is still fairly low risk, but since having my son (who has LI) I look at statistics very differently!)

How wonderful to hear about your OB/GYN taking a proactive part in learning about ichthyosis. That's wonderful! I have to laugh looking back at the birth of my son. My OB/GYN had never had any experience with ichthyosis before, and before they figured out what it was my son had, I'm sure he was doing his homework reviewing my files to see if he'd have a lawsuit on his hands!

Anyway, keep us posted on how it all goes! Blessings to you and the little "bun!"

Susie
_________________________
Susie

Daughter, Emma born 9/2001 -unaffected
Son, Andrej born 8/2003 - has Lamellar Ichthyosis
Daughter, Tori born 3/2006 - has Lamellar Ichthyosis

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#10416 - 06/03/05 02:47 AM Re: Annoucement
charmed7 Offline
Member

Registered: 03/07/04
Posts: 165
Loc: Hartford, CT
So I'm bored and just checking out some posts and realized I never posted what I'm having.

It's a girl!!! [img]http://www.ichthyosis.com/ubb/smile.gif[/img]

I'm temporarily relieved. Of course my mind keeps circling about if my son was mis-diagnosed and it's not x-link and there's still a chance the baby girl could have it. So I try to change the subject (yes I'm argueing with my own mind) and then I worry she'll be a carrier yadda yadda. But for the most part I'm just having the most fun buying all the cute baby girl clothes. She's very calm and not kicking much. Which is making my friends mad that they can't feel her kick. I'm very uncomfortable and am not looking forward to August 9 months pregnant. My planned C-Section is August 29th. So the count down begins.

I'm getting some ultra sounds done in 3-D. I'm going to see if I can scan them to the computer and I'll post them if so. She's been looking at the ultra sound everytime so far so hopefully we get some really cool pictures.

Talk to you all soon.
_________________________
I have a gifted 14 year old boy with X-Link Ichthyosis, Type I Diabetes and Bipolor Disorder.
I have a 7 year old girl who is uncanningly healthy
I have a spunky 1 year old who doesn't quite understand the word "No" yet.

Top
#10417 - 06/26/05 04:33 AM Re: Annoucement
threerxli Offline
Member

Registered: 01/14/03
Posts: 515
Loc: virginia
I did that too. When I had the blood tests done with my third, and I said "YES< ITS A BOY!" secretly I was saying, if it's not a boy well, then what??? Anyway, ours had a penis so we knew it was XLI. Had it been a girl, I would have wondered just like you, carrier etc. At least if you stop and think about it, she has one of the best sorces of support she will ever need. She will have an uncle for her children that understand. She will have a mom that has walked in her shoes, with excellent ideas and suggestions. And, I know this is a huge jump to the future, but a wonderful understanding grandmother for her children. LOL Congrats again...how are you feeling otherwise? Do you have energy? Are you sick at all? LOL I just love comparing pregnancys..they are all so different.

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#10418 - 07/18/05 08:18 PM Re: Annoucement
charmed7 Offline
Member

Registered: 03/07/04
Posts: 165
Loc: Hartford, CT
<SIGH> The count down begins. Only 4 more weeks of work!!! I'm getting a baby shower this weekend and mom is coming out for a visit. So it's going to be a busy week.

I'm feeling ok. My first trimester I was very tired and sick feeling, but never had morning sickness. Now I'm just very tired. Never thought breathing would be such a conscious event. This baby is very calm compared to my son who never stopped kicking. She just pushes back every once in a awhile. It's going to be a huge difference from my hyper-active little boy to a calm little girly-girl. I'm dreading Barbie already!!!

My last ultrasound was last week. Everything is going great. She has lots of amniotic fluid and she's weighing a week bigger than she is. No one seemed to worry about her size so I'm not going to worry. Just looking forward to Maternity Leave at this point [img]http://www.ichthyosis.com/ubb/smile.gif[/img]
_________________________
I have a gifted 14 year old boy with X-Link Ichthyosis, Type I Diabetes and Bipolor Disorder.
I have a 7 year old girl who is uncanningly healthy
I have a spunky 1 year old who doesn't quite understand the word "No" yet.

Top
#10419 - 08/21/05 05:54 PM Re: Annoucement
charmed7 Offline
Member

Registered: 03/07/04
Posts: 165
Loc: Hartford, CT
8 more days until planned C-section!!! And boy I think she wants out. She dropped a little more than a week ago. And I had some mild contractions last Wednesday. I'm secretly wishing I go into labor early, I just want to meet my pushy little baby. But 8 days is not that far away. Maternity leave has been nice. My son's skin is looking pretty good I have to say. And it's given me some time to look for new products. I'm going to research one I found and start another post about it. It has 25% shea butter in it. It's called Peaux Seches. I'll keep you all informed. I probably won't post until I get home in September. I'll get a link for pictures. [img]http://www.ichthyosis.com/ubb/smile.gif[/img] Thanks everyone for listening.

Sheila
_________________________
I have a gifted 14 year old boy with X-Link Ichthyosis, Type I Diabetes and Bipolor Disorder.
I have a 7 year old girl who is uncanningly healthy
I have a spunky 1 year old who doesn't quite understand the word "No" yet.

Top
#10420 - 08/22/05 03:27 PM Re: Annoucement
immystique Offline
Member

Registered: 03/09/05
Posts: 271
Loc: Grand Junction, CO, USA
How excited you must be getting! My Jena (just born Aug 12)couldn't wait for her planned c-section (was supposed to be the 16th)and made us go to the hospital a few days early! We were in & out of the hospital before her "planned" date!

The docs & nurses at the hospital were very impressed with my healing-an upside to LI, I suppose! They asked me if I wanted to go home early (on Sunday, when I had Jena on Friday). Of course I did! I realized C-sections aren't all that bad, but I will still prefer the next one to be born "naturally"!

The only thing that got bothersome was that I had to explain my skin condition to anyone who came into the room, each nurse, the docs, the anesthesia people, etc. I joked w/ my husband that it seems almost "scary" to have to explain it and spell it to medical personnel! [img]http://www.ichthyosis.com/ubb/smile.gif[/img] I was tempted to pin a little tag on my gown so I wouldn't have to explain it so often!
_________________________
If the grass looks greener on the other side, maybe it's time to start watering your lawn!

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#10421 - 09/03/05 04:47 AM Re: Annoucement
charmed7 Offline
Member

Registered: 03/07/04
Posts: 165
Loc: Hartford, CT
So...Baby Lilah Mae was born on Monday, the 29th. 7 lbs 15 oz; 20 1/2 inches. Here is a link to our picture album.

She's so precious. Very calm, only crys for diaper changes and food. She pretty much sleeps most of the time, but when she is up she likes to look around and get her feet kissed.

Big Brother is doing an awesome job. He's helping with dirty diapers, feeding and making sure her toys have been Big Brother approved.

Thanks everyone for your support.

[This message has been edited by charmed7 (edited October 07, 2005).]
_________________________
I have a gifted 14 year old boy with X-Link Ichthyosis, Type I Diabetes and Bipolor Disorder.
I have a 7 year old girl who is uncanningly healthy
I have a spunky 1 year old who doesn't quite understand the word "No" yet.

Top
#10422 - 09/03/05 12:07 PM Re: Annoucement
Hearsay Offline


Member

Registered: 01/16/04
Posts: 1449
Loc: Richmond, VA, USA
Congratulations!! She is so beautiful!

And what a lovely name!
_________________________
Jennifer
Ichthyosis-en-Confetti Type 2
Husband, Nathan - 10, Elliot - 7, Oliver - 4, all affected.
I also have an unaffected daughter, age 8.


email: jennifer at confettiskin dot com
facebook - find me on "ichthyosis mommy spot" or "friends of ichthyosis"

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#10423 - 09/03/05 02:12 PM Re: Annoucement
wva Offline
Member

Registered: 08/08/05
Posts: 401
Loc: Detroit, MI, USA
Just wanted to say congrats to u and ur family. Me and mine wish u the best! Saw the picture of ur baby girl...what a cutie!

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#10424 - 09/03/05 02:17 PM Re: Annoucement
immystique Offline
Member

Registered: 03/09/05
Posts: 271
Loc: Grand Junction, CO, USA
Congrats on your baby girl! She's such a cutie, and I LOVE the name! You are such a happy family.
_________________________
If the grass looks greener on the other side, maybe it's time to start watering your lawn!

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#10425 - 09/08/05 05:01 AM Re: Annoucement
lisat Offline
Member

Registered: 01/05/05
Posts: 61
Loc: Encinitas, CA, USA
Congratulations!!! She is SO cute! I hope you're getting some sleep!

Lisa

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