I am part of a Bafta Award nominated production team who are making a program about 2 teenage sisters in the UK who have what is known as Harlequin Syndrome.
The sisters' disease is pretty rare in the UK and we wanted to express to them that they are not alone by involving a family, from across the Atlantic, in the project. The experiences of a second family would help highlight skin diseases more fully.
It would be great to talk with you about the documentary which will be aired in the UK and the US. I am based in California at the moment. If you feel you might be able to help or even that you might be able to put me in touch with someone who could have a positive input then please contact me with either your email or a phone number.
My email is firstname.lastname@example.org
Look forward to hearing from you.
Nadia - UK Documentary