Ryley Started Kindergarten last Sep and I was full of all different feelings. I would say the strongest was fear though. I was so afraid of how she would get lotioned, how she would do her school work when her fingers and hands were split, but most of all how the other kids would treat her. What I did was before school started I talked to her teacher, the school nurse, and Princepal. We got a health plan together with all the do's and dont's for her and her care. I also gave them the video F.I.R.S.T has and some pamphlets on Ichthyosis. I also went through the treachers hand guide and highlighted all the things I felt were very important.
After school started probebly 3 days after it started I sent a note home with each student telling their parents I would be talking to the kids about Ryley and
Ichthyosis. When the day came I had a good turn out of parents. I read a story called The Legend of Spookley the Square Pumpkin. It is a great story and is on a level that little kids can understand. I also took Ryleyd lotion, her cooling vest, wraps for her hands and a few other things. I told the kids what they were for and let them hold them. It worked out great! She has only had one or two problems but with older kids and she took care of it all on her own. The boys have never said anything to her again. Ryley also lotions herself at scool in the nurses office. I think us as parents are more worried and scared then the kids are. I am sure Reanna will be fine. Let us know how things go and good luck!!
[This message has been edited by ShaunaJ (edited February 27, 2004).]
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