Ears and EHK

Posted by: MJsMom

Ears and EHK - 12/18/03 04:38 PM

My six year old son failed his hearing test in school. We took him to an ear, nose and throat specialist. The doctor told us his ears are filled with alot of dead skin that he can't even see the eardrum. We been using debrox and he flushed them out and now he wants us to do it again and come back in 2 wks. If this doesn't work he'll have to get tubes which I'm hoping he does not need them. This is his first time getting his ears cleaned and not ever having any other ear problems, does anyone have any advice on this matter because I really don't want to see him get the tubes, unless absolutely neccessary.
Thank you,
worried mom
Posted by: ShaunaJ

Re: Ears and EHK - 12/18/03 06:32 PM

My 5 year old daughter hasl lamellar and she sees and ENT every 30 days to get her ears cleaned. Her doctor said it wouldn't help getting tubes in her ears. The problem is the wax clings to the dry skin in the canals then blocks the ear drum. We have found the best thing that works so far is going to the ENT every 30 days. Since we have been doing this she has never had a problem with hearing or her testing. Try not to worry so much. I know it is hard but these kids are stronger then we think.

Shauna
Posted by: Anonymous

Re: Ears and EHK - 12/19/03 01:14 AM

MJ,
I agree with Shauna, tubes won't stop the skin from growing and dying in his ears. I've never had problems with my ears, even though my skin is pretty thick. I do clean them everyday with a Qtip, more because it feels good then out of necessity. I do have a suggestion to help loosen the dead skin in his ear, try something that will lubricate it first, like baby oil, olive oil, lotion, what ever you prefer. Put it in his ears at night and in the morning clean his ears out with a Qtip as best you can. Be careful not to hit his eardrum. This would probably be something you would want to do the night before he goes in to have them cleaned out by a doctor, it will help loosen the dead skin so the doc has an easier time. I know debrox works on ear wax since ear wax is actually a blood gas by product it disolves and loosens it, but does it loosen dead skin?? I would think it probably dries the skin even more. My ears clean out much easier after a hot shower or a bath, I think the key is to soften the skin up. Try lubricating them and let me know how it goes.
Keith.
Posted by: ShaunaJ

Re: Ears and EHK - 12/19/03 03:32 AM

Keith is right baby oil is good to use. We use it 3 days before the ENT appt. We put them in every night those 3 days. This helps the ENT tons. It makes the lose skin softer and easier to get out. Ryleys ENT told us not to use debrox or anyting other then baby oil, or olive oil. Let us know how things are going for your son.

Shauna
Posted by: pauline5

Re: Ears and EHK - 12/19/03 01:17 PM

Hi MJsMom:

Wow I was 6 too when I failed also...

I had lots of trouble at school when I first started, always getting my work wrong, and my mother was told to take me to an ENT specialist...I was going deaf in my left ear, as my eardrum was perforated from all the skin blocking it...

Over a few years I had 3 general anasthetics to remove the skin and wax that had gone too far down the canal for the ENT doctors to flush them sufficiently.

Thereafter for many years, I regularly had my ears flushed out, as Shauna described, and yes, olive oil is excellent for softening...put in at bedtime, with cotton wool to hold it in, and clean in morning,...

Someone else on here said it is good to keep pouring warm water into the ears, to soften/loosen the skin also...and it works great...

You will be pleased to know that the perforated eardrums can heal themselves with time, (if that was to ever happen, fingers crossed it doesn't)...

I now however have some permanent hearing loss in my left ear, although it is a result of having osteosclerosis, which is some fusing of the 3 minute bones in the canal, that vibrate to trasmit sound waves into audible sound for the inner ear to translate...

I am not sure if Osteosclerosis is related to Ichthyosis, the ear specialist did ask me...

Be very careful forcing wax and stuff out with cotton tips, as it can irritate our skin inside, and cause a throbbing pain, and sometimes a discharge...

Pauline
Posted by: REBECCA

Re: Ears and EHK - 01/05/04 10:11 PM

My 7yr old daughter failed her first hearing test at 18 months old. Because Her ears were blocked with dry skin . her E.N.T. doctor put the tubes into her ears which he said would cure the hearing problems but they don't. rhiannon has had 3 lots of tubes put in in the last four years because they keep falling out. which I think has a lot to do with the ichthyosis.Because usually one set can last up to eight years before falling out.
so now we go every 8 weeks and he sucks all the dry skin out and her hearing is great .

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Posted by: REBECCA

Re: Ears and EHK - 01/05/04 10:22 PM

Quote:
Originally posted by REBECCA:
My 7yr old daughter failed her first hearing test at 18 months old. Because Her ears were blocked with dry skin . her E.N.T. doctor put the tubes into her ears which he said would cure the hearing problems but they don't. rhiannon has had 3 lots of tubes put in in the last four years because they keep falling out. which I think has a lot to do with the ichthyosis.Because usually one set can last up to eight years before falling out.her last lot fell out after just 4 months.
so now we go every 8 weeks and he sucks all the dry skin out and her hearing is great .
she has not failed a hearing test since he began cleaning them out or giving them a good vacuming as rhiannon says.




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Posted by: Annamarie

Re: Ears and EHK - 01/12/04 06:42 PM

My son Ryan also used to have the ENT clean out his ears every 30 days or so. Over the years we began using a solution of peroxide and warm water (50/50) letting that sit in the ear for a little bit bubbling up stuff and then using a syringe or just letting the solution run out. If there is big skin it will come up. Then maybe a q-tip to remove little bits of skin. Make sure to cover side of face so solution doesn't get into eyes.
Posted by: Hearsay

Re: Ears and EHK - 01/17/04 03:42 AM

My son is almost 13mo and we've been to the ENT once just so we're ready if we need to start visiting. My husband did as a child "often" but hasn't needed it more than once or twice since completing high school. He has bent a paper clip, of all things, into its long shape so that it looks like an 8. He scrapes his canals daily right after a bath, then uses q-tips for the rest.

I wouldn't recommend that on a child, though. For my son, we just use q-tips. I put them in hald the length of the cotton and just twirl it. Every couple months we use a baby oil flush. I also have invested in a "Dr. Mom" otoscope - I bought it on Ebay for $20 US or so, and my pediatrician showed me how to look so you can see the whole canal. I probably use it every 2 weeks or so.

Jennifer