ANYONE WITH LLAMELAR ICHTHYOSIS IN THE BAY AREA??

Posted by: organic.princess

ANYONE WITH LLAMELAR ICHTHYOSIS IN THE BAY AREA?? - 01/13/12 02:22 AM

Hello, my name is Myra. I have a 2YR old daughter w/ Lamellar Ichthyosis. We would like to see if there are any people with Ichthyosis in the Bay Area. Thank you.
Posted by: Anonymous

Re: ANYONE WITH LLAMELAR ICHTHYOSIS IN THE BAY AREA?? - 02/07/12 02:55 PM

I have a 8 year old niece that has Lamellar Ichthyosis. I live in Virginia Beach area. I found this today. Hope you will respond
Posted by: Les Avakian

Re: ANYONE WITH LLAMELAR ICHTHYOSIS IN THE BAY AREA?? - 04/11/12 11:14 PM

Hello Myra and Anonymous
If you contact our ichthyosis foundation FIRST at (215)997-9400 or info@firstskinfoundation.org., our staff can put you in contact with ichthyosis families in the Bay Area. Also, you can call the University of California, San Francisco Dermatology Dept. and maybe their staff can put you in touch with families in and around San Francisco. Ask if they still run the Ichthyosis Clinic. It is a wonderful way to learn about ichthyosis and meet other families in the Bay area. Good luck Myra and Anonymous.
Les
Posted by: Tatergirl

Re: ANYONE WITH LLAMELAR ICHTHYOSIS IN THE BAY AREA?? - 04/04/14 07:15 PM

Hello,
I recently moved to the Bay Area. I have a daughter who just turned 3 with Lamellar Ichthyosis. I would love to connect!